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If I were to get married, I would not want to be a financial burden on my husband because I lost my Social Security.

It is hard enough now as it is with me supporting myself.

If only one person in the couple is receiving SSI, the benefit will still be reduced or they may no longer be eligible for it.

In addition, there is also a resource limit; the amount of money you can have in the bank for an individual is ,000 and for a couple it is only ,000.

Without the Medicaid loss, my spouse would have probably taken care of all of the above and more instead of the government.

People with disabilities on Medicaid who get married and cannot stay on Medicaid do save the Medicaid program some money, but they cost other government programs more.

I was diagnosed with Duchenne Muscular Dystrophy at age three.

At almost age 37 I am on a ventilator 24/7 and can only turn my head a little and move my fingers slightly.

I want to share with you how marriage penalties are affecting real people, and why we want them changed, by sharing the perspectives of two other self-advocates: Timothy and Kurtlyn.It provides cash to meet basic needs for food, clothing, and shelter.If two people receiving SSI get married, they will receive 25% less in benefits than they did as two individuals. We fall in love and want to make a commitment to the person that we love and become a family. Yet, too many people with disabilities must choose between getting married and continuing to receive the benefits they need to live from federal programs such as Supplemental Security Income (SSI) and Medicaid.Too many have to struggle with this choice because of "marriage penalties." SSI is a needs-based federal program that helps people with disabilities (as well as people who are elderly) who have little or no income.

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